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Health and Medical Guide to Bones, Joints and Muscles

Muscular Dystrophy

Health information topics about Muscular Dystrophy:

Children

    1. Everybody's Different Nobody's Perfect
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/nobody/index.html

    2. Breathe Easy: Respiratory Care for Children with M
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/breathe/index.html

    3. Meaning of Muscular Dystrophy
    Nemours Foundation
    http://kidshealth.org/kid/health_problems/bone/muscular_dystrophy.html

Clinical Trials

    1. ClinicalTrials.gov: Muscular Dystrophies
    National Institutes of Health
    http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D009136&recruiting...

    2. ClinicalTrials.gov: Muscular Dystrophy, Duchenne
    National Institutes of Health
    http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D020388&recruiting...

Coping

    1. Parents & Family: Connecting with Your Son
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/emotional/connecting.html

    2. Learning to Live with Neuromuscular Disease: A Mes
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/learning/index.html

    3. 101 Hints to "Help-with-Ease" fo
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/101hints/

Diagnosis/Symptoms

    1. Muscle Biopsies
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/Quest/q74ss.html

    2. Accurate and Affordable Diagnosis of Duchenne Musc
    National Institute of Neurological Disorders and Stroke
    http://www.ninds.nih.gov/news_and_events/news_articles/news_article_dmd_tes...

    3. Creatine Kinase Test
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/Quest/q71ss-cktest.html

    4. Electromyography and Nerve Conduction Velocities
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/Quest/q75ss.html

Disease Management

    1. Physical Therapy
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/treatment/physical.html

Genetics

    1. Genetics Home Reference: Muscular dystrophy, Duche
    National Library of Medicine
    http://ghr.nlm.nih.gov/condition=musculardystrophyduchenneandbeckertypes

    2. Genetics Home Reference: Myotonic dystrophy
    National Library of Medicine
    http://ghr.nlm.nih.gov/condition=myotonicdystrophy

    3. Genes and Disease: Duchenne Muscular Dystrophy
    National Center for Biotechnology Information
    http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd...

    4. Genes and Disease: Myotonic Dystrophy
    National Center for Biotechnology Information
    http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd...

National Institutes of Health

    1. Muscular Dystrophy (MD)
    National Institute of Neurological Disorders and Stroke
    http://www.ninds.nih.gov/disorders/md/md.htm

Newsletters/Print Publications

    1. Quest
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/Quest/q-curr.cfm

Organizations

    1. National Institute of Neurological Disorders and S

    http://www.ninds.nih.gov/

    2. National Institute of Arthritis and Musculoskeleta

    http://www.niams.nih.gov/

    3. Parent Project for Muscular Dystrophy Research

    http://www.parentprojectmd.org/

    4. Muscular Dystrophy Association

    http://www.mdausa.org/

Overviews

    1. Muscular Dystrophy
    Mayo Foundation for Medical Education and Research
    http://www.mayoclinic.com/invoke.cfm?id=DS00200

    2. Major Characteristics of the Nine (9) Muscular Dys
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/fa-md-9.html

Related Issues

    1. Seating Requirements for Young Men with DMD
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/treatment/seating_req.html

    2. Parents & Family: Daily Life with Duchenne
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/emotional/life.html

    3. Frequently Asked Questions about Wheelchairs
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/treatment/wheelchairsfaq.html

    4. Frequently Asked Questions about the Use of Splint
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/treatment/splintsFAQ.html

Research

    1. Protein May Hold Key to Repair of Damaged Muscles
    National Institute of Arthritis and Musculoskeletal and Skin Diseases
    http://www.niams.nih.gov/ne/highlights/spotlight/2004/follistatin.htm

    2. MDA Research Advances Rapidly
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/resdev.html

    3. Gene Therapy Reaches All Damaged Muscles in Muscul
    National Institute of Arthritis and Musculoskeletal and Skin Diseases
    http://www.niams.nih.gov/ne/highlights/spotlight/2004/gene_muscle_mouse.htm...

    4. Exercise is Safe and Beneficial for People with Fa
    American Academy of Neurology
    http://www.neurology.org/cgi/content/full/64/6/E22?maxtoshow=&HITS=20&hits=...

    5. New Gene Therapy Vector May Lead to Treatment for
    National Institute of Child Health and Human Development
    http://www.ninds.nih.gov/news_and_events/news_articles/news_article_md_gene...

    6. Scientists Come Step Closer to New Muscular Dystro
    National Institute of Arthritis and Musculoskeletal and Skin Diseases
    http://www.niams.nih.gov/ne/highlights/spotlight/2005/heregulin.htm

Specific Conditions

    1. Distal Muscular Dystrophy (DD)
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/dd.html

    2. Congenital Muscular Dystrophy (CMD)
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/cmd.html

    3. Duchenne Muscular Dystrophy (DMD) (Also Known as P
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/dmd.html

    4. Becker Muscular Dystrophy (BMD)
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/bmd.html

    5. Emery-Dreifuss Muscular Dystrophy (EDMD)
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/edmd.html

    6. Facioscapulohumeral Muscular Dystrophy (FSH or FSH
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/fshd.html

    7. Myotonic Dystrophy (DM) (Also known as Steinert�
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/dm.html

    8. Oculopharyngeal Muscular Dystrophy (OPMD)
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/opmd.html

    9. Rare Muscular Dystrophies: Congenital, Distal, Eme
    Muscular Dystrophy Association
    http://www.mdausa.org/publications/fa-rareMD.html

    10. Limb-Girdle Muscular Dystrophy (LGMD)
    Muscular Dystrophy Association
    http://www.mdausa.org/disease/lgmd.html

Teenagers

    1. Muscular Dystrophy
    Nemours Foundation
    http://kidshealth.org/teen/diseases_conditions/bones/muscular_dystrophy.htm...

Treatment

    1. Steroids / Nutritional Supplements / Antibiotics
    Parent Project for Muscular Dystrophy Research
    http://www.parentprojectmd.org/treatment/supplements.html



 



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